Inclusion und Participation

Innovative Inclusion and Participation Research

How must innovative research be designed to support the success of inclusion and participation effectively, consistently and sustainably?

Formulated against the background of application orientation, the question is: How can participatory research be used to not only deal with the challenges of social change reactively, but to shape them prospectively?

A multi-professional team with backgrounds in psychology, genetics, education for the disabled, history, sociology and politics is dedicated to this question.

The core competence of the TRAWOS-Institute in this thematic field lies in the innovative design and implementation of complex research designs, embedded in theoretical and historical models.

The following principles/procedures are implemented:

  1. Combination of quantitative and qualitative research in mixed-method designs
  2. Participatory research/ ethnographic methods
  3. Flexible design (emerging designs, dynamic process design)
  4. Consistent alignment of the study design with practical experience from the very beginning: Which questions are relevant for actors? What experiences already exist? What solutions are needed? Goal: Ensuring the usability and sustainability of the research projects.
  5. Analytically complex understanding of problems and solutions by using theoretical and historical models
  6. Development and application of survey tools that cover several perspectives (people with disabilities, professional caregivers, private caregivers, political actors)

     

    The development of a research design that takes these needs into account is one of the main focuses of the team. An example of this is the Williams-Beuren syndrome (WS).

    The translation of research results into a regional communication and activation process is one of the main objectives of the study: Wer kommt? Wer geht? Wer bleibt? (Who is coming? Who is leaving? Who is staying?) documented. The support and development of transformative practice has completed the regional transfer process.

    References
    • WS and Friendship I - Initiation of International Collaboration
      Enhancing Understanding of Friendship Development, Feelings of Loneliness, and Experiences of Social Victimization Among Individuals with Williams Syndrome (04/2019-04/2021)
    • WS and Friendship II - Loneliness, social vulnerability and their psychological complications under conditions of intellectual disability - Williams-Beuren syndrome (WBS) as a key to understanding the development of the concept of "friendship"? (04/2019-12/2021)

    • WS - Assesing the Needs II - How to improve the quality of life of people with Williams Syndrome? Comment améliorer la qualité de vie des personnes porteuses du Syndrome de Williams? (04/2019-04/2021)
    • WS - Assesing the Needs I - Challenges, Resources and Objectives in everyday life with Williams-Beuren Syndrome – Assessing the Needs for a tailored supporte (5/2017 - 12/2017)